Title: Factors Associated with Supportive Care Service Use Among California Alzheimer's Disease Patients and Their Caregivers.

Authors: Newkirk, Lori A; Dao, Virginia L; Jordan, Joshua T; Alving, Loren I; Davies, Helen D; Hewett, Linda; Beaudreau, Sherry A; Schneider, Logan D; Gould, Christine E; Chick, Christina F; Hirst, Rayna B; Rose, Sophia Miryam Schüssler-Fiorenza; Anker, Lauren A; Tinklenberg, Jared R; O'Hara, Ruth

Published In J Alzheimers Dis, (2020)

Abstract: BACKGROUND: Existing literature on factors associated with supportive care service (SCS) use is limited. A better understanding of these factors could help tailor SCS to the needs of frequent users, as well as facilitate targeted outreach to populations that underutilize available services. OBJECTIVE: To investigate the prevalence of SCS use and to identify factors associated with, and barriers to, service use. METHODS: California Alzheimer's Disease Center patients with AD (n = 220) participated in the study from 2006-2009. Patients and their caregivers completed assessments to determine SCS use. Cognitive, functional, and behavioral status of the patients were also assessed. A two-part hurdle analysis identified 1) factors associated with any service use and 2) service use frequency among users. RESULTS: Forty percent of participants reported using at least one SCS. Patients with more impaired cognition and activities of daily living and more of the following: total number of medications, comorbid medical conditions, and years of education were more likely to use any SCS (p < 0.05). Factors associated with more frequent SCS use included younger age, more years of education, older age of AD onset, female gender, and having a spouse or relative for a caregiver (p < 0.05). Caregivers frequently indicated insufficient time as a reason for not receiving enough services. CONCLUSION: Factors associated with any SCS use mostly differed from those associated with SCS frequency, suggesting different characteristics between those who initiate versus those who continue SCS use. Our findings highlight the importance of targeted education on services and identifying barriers to long-term SCS use.

PubMed ID: 31743997

MeSH Terms: Activities of Daily Living; Age Factors; Age of Onset; Aged; Aged, 80 and over; Alzheimer Disease/psychology; Alzheimer Disease/therapy*; California; Caregivers/psychology*; Comorbidity; Educational Status; Female; Health Services; Humans; Male; Mental Status and Dementia Tests; Quality of Life; Social Support; Socioeconomic Factors