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Publication Detail

Title: Agreement between self-reported and register-based cardiovascular events among Danish breast cancer survivors.

Authors: Langballe, Rikke; John, Esther M; Malone, Kathleen E; Bernstein, Leslie; Knight, Julia A; Lynch, Charles F; Howell, Rebecca M; Shore, Roy; Woods, Meghan; Concannon, Patrick; WECARE Study Collaborative Group; Bernstein, Jonine L; Mellemkjær, Lene

Published In J Cancer Surviv, (2018 Feb)

Abstract: We examined the degree of over- and under-reporting of cardiovascular diseases (CVDs) among female breast cancer survivors comparing self-reports to diagnostic codes from the Danish National Patient Register (NPR).The study comprised 357 Danish breast cancer patients from the WECARE study who completed a telephone interview concerning CVDs. Disease diagnoses for these women were obtained from the NPR. Agreement was calculated as the number of diagnoses that were both self-reported and in the NPR divided by (1) number of self-reported diagnoses (over-reporting) or (2) number of diagnoses in the NPR (under-reporting).In total, 68 women reported 96 specific cardiovascular outcomes of which 56 (58%) were found in the NPR. Ninety cardiovascular diagnoses were found in the NPR of which 56 (62%) were specifically reported at the interview. There was 80% agreement as to the occurrence of a cardiovascular diagnosis overall. Of 289 women reporting no CVD, 273 (94%) had no diagnoses in the NPR.Breast cancer survivors seem to report absence of CVD accurately, but they both over-report and under-report specific cardiovascular diagnoses. Using a broader definition of CVDs improves the agreement between self-reported and NPR data.Determining how cancer treatments affect the risk of cardiovascular morbidities is essential, and the development of high-quality methods for collecting such data is critical. While self-reported data are adequate for assessing the presence of any CVD condition, medical record review will yield higher quality data on specific CVD conditions.

PubMed ID: 28963606 Exiting the NIEHS site

MeSH Terms: No MeSH terms associated with this publication

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