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COVID-19 Related Resources

This page provides links to websites where researchers can find COVID-19 related resources in addition to those ßavailable in the DR2 Resources Portal.

NIH COVID-19 Research Resources

Disaster Research Response (DR2) COVID-19 Collection

All COVID-19 resources, including surveys, questionnaires, protocols, data dictionaries, and other related tools located in the DR2 Resources Portal.

PhenX Toolkit COVID-19 Research Collections

Recommended collections of measurement protocols to support research on COVID-19, including Specialty Collections.

NIH COVID-19 Common Data Elements (CDE)

COVID-19 Therapeutic Trial Common Data Elements

Recommended common data elements for use in all therapeutic clinical trials for COVID-19, including NHLBI-CONNECTS trials.

NIH RADx Common Data Elements

A set of 12 common data elements required to be used in data collection and generation by all studies involving human participants under the NIH Rapid Acceleration of Diagnostics (RADx) program.

NIH RADx-UP Common Data Elements

A set of common data elements and standardized study questions to be used in projects supported under the NIH Rapid Acceleration of Diagnostics-Underserved Populations (RADx-UP) program.

Recommendations for Common Data Elements for COVID-19 Studies Including Pregnant Participants

A battery of recommended biomedical and psychosocial common data elements (CDEs) and measures that, when combined across datasets, can improve the collective understanding of COVID-19 in pregnant and lactating women and their neonates. See the direct link to the "COVID-19 Pregnancy Registry | Biomedical and Psychosocial Recommended Measures". Also, find REDCap files.

Recommendations for Common Data Elements for COVID-19 Studies Including Pediatric Participants

A battery of recommended biomedical and psychosocial common data elements (CDEs) and measures that, when combined across datasets, can improve the collective understanding of COVID-19 in pediatric participants.

Recommendations for Common Data Elements for Post-Acute Sequelae of SARS-CoV-2 infection (PASC) Studies Including Pregnant Participants

A battery of recommended biomedical and psychosocial common data elements (CDEs) and measures that, when combined across datasets, can improve our collective understanding of Post-Acute Sequelae of SARS-CoV-2 infection (PASC) in pregnant and lactating women and their neonates.

NHLBI-CONNECTS Common Data Elements (CDE)

This document describes recommended data elements for all therapeutic clinical trials for COVID-19.

Other Common Data Elements (CDE) Repositories

National Cancer Institute (NCI) CDE Browser

CDEs primarily derived from data collection forms, spreadsheets, researcher data dictionaries, and protocols used in clinical trials.

NIH CDE Repository

Structured human and machine-readable definitions of data elements that have been recommended or required by NIH Institutes and Centers and other organizations for use in research and for other purposes.

Other COVID-19 Research Tool Repositories

COVID-19&Social Determinants of Health Data Collection Instrument Repository

Created by the Social Science Extreme Events Research (SSEER) network and the CONVERGE facility at the Natural Hazards Center at the University of Colorado Boulder.

Societal Experts Action Network (SEAN) COVID-19 Survey Archive

Compiled by SEAN, an expert group convened by the National Academies of Sciences, Engineering, and Medicine.

COVID-19 Research Data Platforms

Harvard Dataverse COVID-19 Collection

Free data repository open to all researchers from any discipline, both inside and outside of the Harvard community, to share, archive, cite, access, and explore research data.

ISARIC COVID-19 Data Sharing Platform

Hosted by a global federation of clinical research networks.

openICPSR COVID-19 Data Repository

Free repository for data examining the social, behavioral, public health, and economic impact of the novel coronavirus global pandemic.

Related COVID-19 information is available through the DR2 Program on the following pages:

Files within the Disaster Research Response (DR2) Resources Portal may not be 508-compliant. If you need help accessing a specific file please contact dr2@niehs.nih.gov. NIEHS is working to make all files fully accessible and conformant.

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